The Down Syndrome Connection has just launched a new group!
Down Syndrome and Autism Alliance
DSC is committed to provide additional services for families whose children have an additional diagnosis, such as autism and ADHD. This group is also open to parents (or persons,) seeking more information about a dual diagnosis of Down syndrome and autism. This DSC group is called, Bay Area Down Syndrome & Autism Alliance.
It is often difficult for families of children with a dual diagnosis to network with local support groups. Families dealing with a dual diagnosis often feel like they don’t fit in with the local Down syndrome support groups. At the same time they are unable to relate with parents in the local autism support groups either. The daily struggles are unique and often difficult to share. This leaves many families feeling isolated and alone.
Bay Area Down Syndrome & Autism Alliance, is a place for families to ask questions, share advice, resources, and experiences about the unique challenges, added stress, struggles and successes of raising a child with a dual diagnosis. The focus is on helping each other to find possible solutions, along with humorous stories, in a safe, non-judgmental environment. This group is open to parents, family members, caregivers, and others working with a child or adult having Down syndrome and autism. DSC will be providing resources, hosting events, and webinars specifically related to the needs of raising a child with a dual diagnosis. Look for our Facebook page, Bay Area Down Syndrome & Autism Alliance.
For more information about Down syndrome and autism, including signs and symptoms and obtaining an evaluation click here:
A Picture is Worth, PECS and Other Visual Communication Strategies in Autism, 2nd edition, Bondy, Andy and Lori Frost (Woodbine House, 2011). An introduction to the Picture Exchange Communication System, which is used by many people with disabilities to communicate basic needs.
Activity Schedules for Children with Autism, McClannahan, Lynn, 2nd edition (Woodbine House, 2010). Covers how to use activity schedules to structure tasks and teach skills
Assessment: A Case for Neurobiological Work-up in Autism, Vatter G (1998)
Autism Society of America- An organization dedicated to improving the lives of all affected by autism. www.autism-society.org
Autism Speaks- An organization with the goal to change the future for all who struggle with autism spectrum disorders. www.autismspeaks.org
Autistic Disorders In Down Syndrome: Background Factors and Clinical Correlates – Rasmussen P, Börjesson O, Wentz E, Gillberg C (2007)
Autistic Spectrum Disorders in Down Syndrome: Further Delineation and Distinction From Other Behavioral Abnormalities, Carter JC, Capone GT, Gray RM, Cox CS, Kaufmann WE (2007) (PDF)
Changing Behavior... & Teaching New Skills, Swiezy N (1999)
Comorbidity of Autistic Spectrum Disorders in Children With Down Syndrome, Kent L, Evans J, Paul M, Sharp M. (1999) (PDF)
Catherine Whitcher- Nationwide speaker, advocate, trainer and IEP Consultant. catherinewhitcher.com
Down Syndrome and Autistic Spectrum Disorder: A Look at What We Know, George Capone, MD (1999)
Down Syndrome-Autism Connection- Non-profit organization serving individuals and families affected by both Down syndrome and autism spectrum disorders. www.ds-asd-connection.org
Down Syndrome-Autistic Spectrum Yahoo! Group
Down Syndrome & Pervasive Developmental Disorders, Nordhauser M (1997)
Down Syndrome With A Slice Of Autism- Blog and Facebook page by a parent who has a son with Down syndrome and autism. www.nickspecialneeds.com
DSE Down Syndrome and Autism Information- Down Syndrome Education International summarizes educational research on children with Down syndrome and autism or an autistic spectrum disorder. www.dseinternational.org/en-us/education21/10/
Dual Diagnosis: The Importance of Diagnosis and Treatment, By Bonnie Patterson, MD (1999)
Kennedy Krieger Institute- Based in Baltimore, MD
More Than Down Syndrome: A Parent’s View, Gurthie Medlen, J (1999)
National Association for the Dually Diagnosed- thenadd.org
NDSS Down Syndrome and Autism Information- The National Down Syndrome Society provides an overview of Down syndrome and autism. www.ndss.org/Resources/Health-Care/Associated-Conditions/Dual-Diagnosis-of-Down-Syndrome--Autism/
Neuroanatomic Correlates of Autism and Stereotypy in Children With Down Syndrome, Carter JC, Capone GT, Kaufmann WE (2008)
Parent Center Hub- "Hub” of information and products for the network of Parent Centers serving families of children with disabilities.
Seeing is Believing- Video Self-Modeling for People with Autism and Other Developmental Disabilities, Buggey, Tom (Woodbine House, 2009). This book provides instructions on shooting and editing video footage to help children with developmental disabilities improve skills through visual modeling of desired behaviors.
The Autism Discussion Page on Anxiety, Behavior, School and Parenting Strategies- A Toolbox for Helping Children Feel Safe, Accepted and Competent. Bill Nason (Jessica Kingsley, 2014). Autism Discussion Page on Facebook
When Down Syndrome and Autism Intersect- Froehlke, Margaret and Robin Sattel Zaborek, editors (Woodbine House, 2013). Survey of best practices for diagnosing, treating and providing care to children with both Down syndrome and Autism.